Team WhyMommy / Inflammatory breast cancer

Life's a bitch !
Photo by pfala

I have been following a blog called Toddler Planet for some time now. Susan Niebur, who writes the blog (under the name “WhyMommy”), is fighting metastatic breast cancer. She encourages people to spread the word about IBC (Inflammatory Breast Cancer), a kind of cancer that “kills without a lump.”

Back in 2007, when she was first diagnosed, Susan wrote a post about IBC and asked other bloggers to repost it. I wasn’t blogging then, but I am happy to repost it now.

Inflammatory Breast Cancer

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.


P.S. Feel free to steal this post too.  I’d be happy for anyone in the blogosphere to take it and put it on their site, no questions asked.  Dress it up, dress it down, let it run around the place barefoot. I don’t care.  But I want the word to get out.  I don’t want another young mom — or old man — or anyone in between — to have to stare at this thing on their chest and wonder, is it mastitis?  Is it a rash?  Am I overreacting?  This cancer moves FAST, and early detection and treatment is critical for survival.

Thank you.

I want to thank Susan for sharing this information, but also for writing a beautiful, honest blog over at Toddler Planet. Watching her go through cancer with grace and courage has really been inspirational for me.

Susan’s latest post indicated that she needs hospice care. Please keep Susan, her husband, and her two little boys (4 and 6) in your prayers.

xo, Lori

4 thoughts on “Team WhyMommy / Inflammatory breast cancer

  1. Wow. She’s a fighter! Thanks to her for getting the word out there, and to you for reposting this. I hope she gets a miracle and pulls through. She certainly deserves one.


    1. I just heard that IBC was the kind of breast cancer a fellow CM consultant died of… and I never knew the signs of it, then. It’s really scary that it’s not common knowledge that self exams should be for all those signs.


  2. I am adding Susan to my Miracle prayers. Susan and Rose Marie, our friend who has a beautiful daughter, Katelyn Bako, and who is suffering from stage 4 cancer that has spread to her brain stem. I am living proof of Miracles. Dear God, grant at least two more!


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