MRI – #AtoZChallenge

We apologize for the interruption of this #AtoZChallenge series. (I had vertigo for three weeks and got behind on everything; then I got all depressed because I couldn’t dig out of the backlog. I’m still not out, by any means, but I miss you all.)

We now return to our regularly-scheduled programming.

I wish it were not so expensive to get an MRI — I’d have them annually. Or more often, if they’d let me!  Because it gives a clear picture of the brain and spinal cord, an MRI can give the clearest picture of the progression of the disease, which would keep me from worrying about it so dang much.

When a person with MS has an MRI, the scarring from the damaged myelin (the coating over the nerve fibers) is visible. If the test is done with gadolinium dye injected into the veins, then areas of myelin that are actively being destroyed will actually light up on the scan.

Some people are afraid of MRIs, fearing that they might get claustrophobic in the machine, but I seriously don’t mind them. In case you’ve never had one, let me describe the process, from my experience.

After you dress in the standard very-attractive backless gown and paper slippers, the technicians make sure you have NO metal on you. No earrings, no watches, no pacemaker, nothing. Since the biggest and most important part of an MRI machine is a giant magnet, I suppose it could suck the metal right out of you, but don’t quote me on that.

When you get to the machine, they hook you up to an IV of gadolinum dye and give you some earplugs, if you are lucky. You lie on the table and get slid into the machine just like a pizza into a wood-fired oven or a drawer into a file cabinet. The tube is strangely close to your face; once, I had one with a mirror right there, but I didn’t think it really helped with the strangeness.

The technician speaks to you through a speaker, telling you what you will hear and/or what you need to do. Usually, you don’t need to do anything, but once I had a cervical (neck) MRI and they told me not to cough or swallow. Trust me, there is nothing more apt to make a person swallow than being told not to. I swear, your mouth starts watering like nobody’s business and you are convinced you will drown before the MRI is over.

What is the same with every MRI I have had, though, has been the sound. I do not have any knowledge of the workings of magnetic resonance imagery, but I can tell you one thing: it is loud. It sounds as though all the employees of the hospital have been gathered together outside of your little tube and instructed to pound on it with their own pipe wrenches. Given that your average brain MRI takes 30 to 60 minutes, you begin to think they will bust through the tube before it is all over.

I have a secret MRI-distracting weapon in my arsenal, though. Years back, I decided to try to say an entire rosary during the MRI. Between the soothing rhythm of the prayers and the mental arguing over what is a Joyful or a Glorious Mystery and what is one of those new-fangled Luminous Mysteries, the entire procedure is over before I have finished. Or else I fall asleep. (Hey, it happens.)

When it’s all over, they roll you back out. Do NOT, under any circumstances, expect that the people who did the test will tell you a single dang thing about what they just saw. They can’t, by law or something, even if they wanted to, even if they have the expertise to read the results. I’m hoping they will, still. But no, they just send you back to your little curtained cubicle to put your clothes back on. You have to wait until they give the film to a radiologist, who reads it and then gives the information to your neurologist, who then reads it and gives the information to you.

I just looked up “MRI” on flickr’s Creative Commons, looking for an image of an MRI machine that I could use for this post. I first got to scroll through page after page of MRI scans, which suits someone of my level of morbid curiosity quite nicely. It was cool to see the variety of head scans. Some show the wrinkles of the brain, some show the eyes, some clearly show the different brain sections.

My scans never look like that. They look way more like big gray slices of nothing, which in MS terms is apparently considered an excellent result. I suppose what is shown all depends on the level at which they are taking the images, whether from the brain equivalent of one inch or 10,000 feet. I’m going to have to ask about that. Anyone know a radiologist?

Big MRI” by liz westCC BY

Candidness – #AtoZChallenge

Here’s the thing about me: I’m constitutionally incapable of not sharing my own personal information. I don’t know why, but I’m compelled to tell you all about everything. The catchphrase is, “With Lori, there’s no mystery.”

So, while I know that there are plenty of people with plenty of excellent reasons not to talk about living with MS, I am not those people. My family knows; my friends know; my boss knows; and I bring it up with random strangers (if we already have a reason to be chatting; I’m not that random).

Having MS is just part of who I am now, and I talk about it that way. I know that I’m lucky to not have any repercussions at work. I’m lucky to have friends that understand when I vanish for periods of time. I’m lucky that I can be candid about my health in so many ways, so I’m never critical of anyone who chooses to use more discretion. I just wish the situation were such that no one felt they had to be silent.

BikeMS – #AtoZChallenge

Let’s start with a disclaimer: I’ve never done BikeMS. But I think this will be the year that changes!

While WalkMS is an event that takes place during a morning in springtime, BikeMS is a summer weekend extravaganza. Cyclists and their teams convene at Western Oregon University in Monmouth, then camp there for the weekend, going for a bike ride each day. You choose rides ranging from 15 to 105 miles, depending on your ability and fitness, then come back to the campsite each night. It sounds so fun!

I don’t know if I can ride a bike very far; the sole of my foot is really hypersensitive, and I’m not sure I can push a pedal repeatedly. But I’m going to find out! I’ll do some training rides beforehand and try to build up my endurance. (Even in my youth, the longest ride I’ve ever done was 50 miles.)

I’ll keep you posted as I learn more!