I just accidentally pulled an all-nighter

Today was mega-prednisone day (1200 mg – that’s over a gram!) and it makes it hard for me to sleep. I took a sleeping pill and went online until the pill kicked in.

Apparently it never did. I just looked out the window and realized it is full daylight and 7:15 am.

Now I have surfed the internet like a mad woman and it is 9 am. I need to wake up my family and sleep the day away. It will be good to sleep these drugs off. Perhaps I will go in the pool with Q this afternoon. The ice-cold water seems to make my leg feel better. They say that heat reduces nerve transmission, so perhaps cold improves it. We do stay very active in the pool to prevent hypothermia, so that may help.

xo – Lori

Daily Check-In:

  • I’m grateful! for the drugs they have for MS. No matter how I hate taking them and how they make me feel, I am willing to do whatever the doctors think will improve my functioning. So far, so good! Ooh, I am also grateful to iTunes for having Glee episodes online. We decided to bite the bullet last night and let Q get one after a long, hard day of work (and all three of us gathered around the laptop to watch). Now all I need to do is figure out how to see Friends and we’ll be golden.

Looks like I’m going to have an asterisk next to my home run record…

‘Cause it’s steroid time, folks.

Chill pill!
Photo by mirjoran

Lori to Kaiser Pharmacist:  “I’ll have one million prednisone, please.”

Pharmacist chuckles to himself, then: “Whoa. You weren’t kidding.”

I’m going to take 12 to 120 times the normal dose, take a sleeping pill, and head to bed.  G’night, y’all.

  • {Clutter} released: 18 cookbooks.  Eleven are simply leaving, seven will be given to friends.  It was not my idea to work on cookbooks tonight, but David’s.  He is cleaning out the pantry (home of Cookbook Overflow), so – again – I can’t complain.  There is a big stack still left to go through, but I have other things on my mind and I really can’t concentrate.

MRI fun for everyone!

Photo by Muffet

I have to get an MRI done of my brain tonight.  The gals who schedule MRIs always ask the same questions: Are you claustrophobic?  Have you ever had dye administered through an IV?  I find these questions bizarre since a) I have had multiple MRIs, with and without dye, without claustrophobia, and b) they did them!  You would think they have all this information in their records, but the protocol seems to take precedence over looking into their own files.  (Update: MRI went well.  The kind technician stabilized my head with foam shims.  I couldn’t move that sucker if I wanted to.)

Monday is supposed to be the first day of the pulsed steroids treatment (a monthly one-day megadose), but I apparently did not have the appropriate labs done since I was at the coast.  Before you start on this treatment, they check into a bunch of different things: bone density, calcium and Vitamin D levels, whether or not you have tuberculosis.  I was ranting this afternoon to David: I understand why they want a baseline bone density test, since some researchers believe prednisone use can lead to osteoporosis, but a TB test?  Is the prednisone going to give me TB?  I had to run to the lab yesterday to give blood, I have to return tomorrow for the TB test, and only after they get the results back will we start the steroids.  My boss will be happy because I will be unexpectedly available for typing purposes.

  • {Clutter} released: 5 magazines I had been saving to “process,” and a cup and soap dish set from Quinland’s bathroom.
  • {Health Worry} released: I am knocking down the tests and labs one by one.  Had an excellent session with Charles; my foot is completely loosened up, and by the end of the hour my numb knee was feeling pain.  Practiced my breathing and releasing extensively.