Orange – #AtoZChallenge

Everyone knows that pink ribbons represent breast cancer awareness. But did you know the color of MS awareness? Yes, it’s orange! (A color, I should add, that it shares with leukemia and kidney cancer, as well.)

At Walk MS, there is a sea of orange-clad people walking the bridges of downtown Portland. Lately, the orange has been spiced up with the addition of a bright lime green, which I love.

Hopefully, someday soon, those orange ribbons will be as ubiquitous as the pink ones, and MS research will really take off. And hopefully, in the very near future, cures will be found, and neither of these ribbons will be needed.

Awareness – #AtoZChallenge

This Saturday, April 7th, is the biggest day of the year for me: WalkMS (here in Portland).

What is WalkMS, you ask? It’s a 5k walk to raise awareness of Multiple Sclerosis, a time when friends and families join into teams and take to the streets to show support for those who live with this disease. I’ve been incredibly blessed to have my team grow larger each year, as more and more of the people I love come out and walk with me.

WalkMS is also a fundraiser for MS research. This is key for someone with Primary Progressive MS like me, because it is a less common form of the disease and one for which they have very few possibilities for treatment.

If you want to participate — by walking with my team or donating to a great cause — just click here. All of us with MS will be grateful. For those of you who already give me so much support, thank you!! I couldn’t do it without you!

MS Fidgety Fundracers – Walk MS Portland 2015

2013-Walk-MS-Leaderboard-Banner-728x90_FinalWalk MS is coming up this weekend and I am sooooo excited. We’ve got a new team name this year (after the blog, see?) and I have a team of awesome people who are going to walk with me, many of whom are new to Walk MS!

One of the big treats this year is going to be having my mom here for the Walk. She is in town for two weeks, and I didn’t put two and two together that it would exactly overlap with Walk MS! I’m also excited to see one of my coworkers, who has been working from home for the past few years. We haven’t seen each other in seven years! (Seven? Is that possible?!) Although we talk on the phone at times and email pretty frequently, seeing him in the flesh for a change will be pretty cool.

With four days to go until the Portland walk, my team has already raised more money than ever before. I can’t even begin to tell you how thankful I am to have the love and support of such awesome people. Because I have Primary Progressive MS, I have a vested interest in MS research. PPMS has no FDA-approved treatments or disease-modifying medications, so all we can do is treat the symptoms.  This year, I’m asking everyone I know to skip one drink in my honor – a glass of wine, a pint of beer, a latte, a gallon of milk – and donate that amount (or more, if you like) to MS research. It could make a big difference in my future.

If you want to donate to Multiple Sclerosis Research, you can go to my Walk MS page here.  Even though the Walk will be held this Saturday (April 18, 2015), fundraising is ongoing, and donations are always welcome.

A million thanks to everyone who works hard to support those of us with MS  during Walk MS and throughout the course of every single day – there is no way we could do it without you!